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Showing posts with label CEUs for MFTs MFT. Show all posts
Showing posts with label CEUs for MFTs MFT. Show all posts

January 31, 2011

Caffeine No Substitute for a Nap to Enhance Memory: Equivalent of 2-3 Cups of Coffee Worsens Motor Learning and Word Recall


Hoping to improve your tennis serve? It's probably better to catch a few winks than load up on java after a lesson, results of a NIMH-supported study suggest. Caffeine impaired such motor learning and verbal memory, while an afternoon nap benefited all three types of learning tested by Sara Mednick, Ph.D., and colleagues at the University of California, San Diego. The researchers report on their findings in the November issue of Behavioural Brain Research. CEUs for MFTs
Background

Ninety percent of Americans use caffeine daily, some substituting it for sleep. While the stimulant enhances alertness and concentration, it's been unclear whether it also helps learning and memory. By contrast, daytime naps, like nighttime sleep, benefit both alertness and memory, Mednick and colleagues have shown in a series of studies.

In this first head-to-head day-time comparison, 61 participants trained in the morning on verbal memory, motor, and perceptual learning tasks. After lunch, one group napped (60-90 min), while two other groups listened to a book on tape and received a pill containing either the caffeine equivalent of a little less than a Tall Starbucks brewed coffee (200mg) or a placebo. Later in the afternoon, the three groups were tested to see how well they had learned the tasks.

Findings of This Study

The nap group performed significantly better on a finger tapping motor task and in recalling words, than the caffeine group. The nap group also trumped the other groups on a texture discrimination task of perceptual learning. The placebo group performed better than the caffeine group on all three tasks. Curiously, just thinking that the pill might contain caffeine — the placebo effect — helped as much as a nap on the motor task.

Significance

Evidence suggests that caffeine interferes with tasks that require processing explicit, as opposed to implicit, information - like recalling a specific word, versus remembering how to type or ride a bike. Studies show that consolidation of such explicit verbal memory during sleep depends on lowered levels of the chemical messenger acetylcholine in the brain's memory hub. Yet, by blocking activity of a natural sedative chemical, caffeine boosts acetylcholine in this hub.

"This increase in acetylcholine by caffeine may impair the consolidation process by blocking replay of new memories," proposes Mednick. "Consistent with this, we found that the greater the explicit component of each task, the worse the caffeine group performed."

What's Next?

"Such an impairment of performance runs counter to society's assumption that caffeine typically benefits cognitive performance," she notes. "Apparent improvements with caffeine might actually reflect a relief from withdrawal symptoms. Just as no medicinal alternative to a good night's rest has been discovered, so too caffeine, the most common pharmacological intervention for sleepiness, may not be an adequate substitute for the memory enhancements of daytime sleep, either."

Mednick and colleagues are using new pharmacological agents found to selectively enhance particular stages of nighttime sleep to see if they can enhance memory consolidation during daytime naps. Brain imaging will pinpoint effects on neural circuits. These studies of pharmacologically enhanced naps could lead to improved treatments for memory impairment in mental disorders, based on manipulations of sleep, say the researchers.

Reference
Mednick SC, Cai DJ, Kanady J, Drummond SP. Comparing the benefits of caffeine, naps and placebo on verbal, motor and perceptual memory. Behav Brain Res. 2008 Nov 3;193(1):79-86. Epub 2008 May 8. PMID: 18554731

November 21, 2010

CDC Says “Take 3” Actions To Fight The Flu



Flu is a serious contagious disease that can lead to hospitalization and even death. In 2009–2010, a new and very different flu virus (called 2009 H1N1) spread worldwide causing the first flu pandemic in more than 40 years. Flu is unpredictable, but the Centers for Disease Control and Prevention (CDC) expects the 2009 H1N1 virus to spread this upcoming season along with other seasonal flu viruses. MFT Continuing Education CEUs CEU
CDC urges you to take the following actions to protect yourself and others from influenza (the flu):
Take time to get a flu vaccine.

■CDC recommends a yearly flu vaccine as the first and most important step in protecting against flu viruses.
■While there are many different flu viruses, the flu vaccine protects against the three viruses that research suggests will be most common.
■The 2010-2011 flu vaccine will protect against an influenza A H3N2 virus, an influenza B virus and the 2009 H1N1 virus that caused so much illness last season.
■Everyone 6 months of age and older should get vaccinated against the flu as soon as the 2010-2011 season vaccine is available.
■People at high risk of serious flu complications include young children, pregnant women, people with chronic health conditions like asthma, diabetes or heart and lung disease and people 65 years and older.
■Vaccination of high risk persons is especially important to decrease their risk of severe flu illness.
■Vaccination also is important for health care workers, and other people who live with or care for high risk people to keep from spreading flu to high risk people.
■Children younger than 6 months are at high risk of serious flu illness, but are too young to be vaccinated. People who care for them should be vaccinated instead.
MFT Continuing Education CEUs CEU http://www.aspirace.com/







Take everyday preventive actions to stop the spread of germs.

■Cover your nose and mouth with a tissue when you cough or sneeze. Throw the tissue in the trash after you use it.
■Wash your hands often with soap and water. If soap and water are not available, use an alcohol-based hand rub.*
■Avoid touching your eyes, nose and mouth. Germs spread this way.
■Try to avoid close contact with sick people.
■If you are sick with flu–like illness, CDC recommends that you stay home for at least 24 hours after your fever is gone except to get medical care or for other necessities. (Your fever should be gone without the use of a fever-reducing medicine.)
■While sick, limit contact with others as much as possible to keep from infecting them.

Take flu antiviral drugs if your doctor prescribes them.

■If you get the flu, antiviral drugs can treat your illness.
■Antiviral drugs are different from antibiotics. They are prescription medicines (pills, liquid or an inhaled powder) and are not available over-the-counter.
■Antiviral drugs can make illness milder and shorten the time you are sick. They may also prevent serious flu complications.
■It’s very important that antiviral drugs be used early (within the first 2 days of symptoms) to treat people who are very sick (such as those who are hospitalized) or people who are sick with flu symptoms and who are at increased risk of severe flu illness, such as pregnant women, young children, people 65 and older and people with certain chronic health conditions.
■Flu-like symptoms include fever, cough, sore throat, runny or stuffy nose, body aches, headache, chills and fatigue. Some people may also have vomiting and diarrhea. People may be infected with the flu, and have respiratory symptoms without a fever.

Visit CDC’s website to find out what to do if you get sick with the flu and how to care for someone at home who is sick with the flu.

November 18, 2010

Faith, Spirituality & Mental Illness CEUs


Evidence is growing of the value that faith-based organizations offer to people with mental illnesses.

Faith-based communities often contribute to recovery by promoting hope and by offering solace and comfort in troubled times; and many consumers acknowledge the positive impact of spirituality and faith on their recovery and ability to cope with life's stresses.

However, not all faith-based organizations are equally knowledgeable about how best to serve people with mental health disorders.

The information available on this Web page can help faith-based communities - both clergy and congregants - increase their awareness of mental health issues and find ways to welcome and support people with mental illnesses, thus reducing discrimination and increasing social inclusion.

1 in 4 households in your church is afraid to tell you this secret
By Carlene Hill Byron

How many families in your church have a loved one who struggles with mental health problems? That’s kind of a trick question. People don’t talk about mental health problems. You’re more likely to hear
them describe their child’s condition as “something like autism,” as the elder of one church we know says. Or they might cover up entirely, as does an elder’s wife in another congregation. When her bipolar disorder swung into mania after childbirth, her family, already managing the added responsibilities of a newborn, had
to manage her condition as well. But because her condition is a secret, they did so without any support beyond the usual “new baby” dinners. The answer to the question is, if your congregation is representative of the U.S. population, one in four
households will struggle with someone’s mental health problems over their lifetime. That’s schizophrenia, bipolar disorder, obsessive compulsive disorder, disabling chronic depression,and various anxiety disorders. Look at the faces seated around you this Sunday. Someone is probably hurting. And they’re probably afraid to tell you.

The least acceptable disability
A study where people ranked disabilities by their “acceptability” returned these results, in order--most acceptable: obvious physical disabilities, blindness, deafness, a jail record, learning disabilities, and alcoholism. Least acceptable: mental health problems. People with mental health problems frighten us because when people become mentally ill, they become someone we don’t know. A bright boy who was his family’s bright hope may find he just can’t cut it anymore as schizophrenia turns him paranoid, disoriented, unmotivated in the extreme, and overwhelmed by
delusional voices that tell him, over and over, how worthless he is. Or, in the case of bipolar disorder, a girl who was a well-liked and active member of her Teen Challenge group may suddenly turn promiscuous, run away from home, and make a new home in the streets of a strange city. Laziness. Promiscuity. Violence. Sin.
That’s what many people see when they look at those with mental health problems. It’s hard to believe that people may behave in such unacceptable ways and not be in control of their behavior. Having a mental health problem is a lot like being on alcohol or drugs, without being able to stop. Medications “work” for
about two-thirds of us. That means that a third of us can’t ever get off the chemical ride that our brains produce. For those of us who can use medications, the side effects can be daunting. Many people become so frustrated with side effects that they stop taking medications. Only about half of us
accept treatment. Even when we are treated, not everyone regains their status as a fully functioning adult.

The challenging good news is that when people with mental illness turn to someone outside “the system” for help, the church is first to get the call 40 percent of the time. Is your church ready?
MFT CEUs, LCSW CEUs
Carlene Hill Byron is the former Director of Communications for Vision New England. Through NAMI—the Nation’s Voice on Mental Illness, she and her husband, James, train churches to effectively serve people within the congregation with mental health problems and also teach NAMI’s class for families of people
with mental health problems. They are members of Asbury United Methodist Church in Raleigh, North Carolina, where James serves on staff.
First published by Vision New England’s Ministries with the Disabled, Acton, Massachusetts.

November 08, 2010

Substance Abuse and Inhalants CEUs

The percentage of adolescents (i.e., youths aged 12 to 17) who used inhalants in the past year was lower in 2007 (3.9 percent) than in 2003, 2004, and 2005 (4.5, 4.6, and 4.5 percent, respectively)

Among adolescents who used inhalants for the first time in the past year (i.e., past year initiates), the rate of use of nitrous oxide or "whippits" declined between 2002 and 2007 among both genders (males: 40.2 to 20.2 percent; females: 22.3 to 12.2 percent)

In 2007, 17.2 percent of adolescents who initiated illicit drug use during the past year indicated that inhalants were the first drug that they used; this rate remained relatively stable between 2002 and 2007

Adolescents have easy access to some dangerous substances—ordinary household products such as glue, shoe polish, and aerosol sprays. These products are safe when used as intended, but they can be dangerous and even deadly when sniffed or "huffed" to get high. Preventing and treating inhalant use problems, as well as raising awareness about the dangers of inhalant use, are important ongoing goals of the Substance Abuse and Mental Health Services Administration (SAMHSA). Monitoring trends in inhalant use is vital to assessing policies intended to reduce inhalant use.
This issue of The NSDUH Report examines trends in the use, dependence or abuse,1 and initiation of inhalants among adolescents (i.e., youths aged 12 to 17). The National Survey on Drug Use and Health (NSDUH) defines inhalants as "liquids, sprays, and gases that people sniff or inhale to get high or to make them feel good." NSDUH collects data not only about the use of any inhalant, but also about the use of specific types of inhalants. Respondents who used inhalants were asked when they first used them, and responses to this question were used to identify persons who had initiated use in the 12 months before the survey. This report uses data from the 2002 through 2007 NSDUHs.

--------------------------------------------------------------------------------
Use and Dependence or Abuse
--------------------------------------------------------------------------------

In 2007, almost 1.0 million adolescents used inhalants in the past year; this represents 3.9 percent of adolescents, which was lower than the rate in 2003, 2004, and 2005 (4.5, 4.6, and 4.5 percent, respectively) (Figure 1). Past year dependence on or abuse of inhalants remained relatively stable between 2002 and 2007, with 0.4 percent of adolescents (around 99,000 persons) meeting the criteria for dependence or abuse in 2007.

Figure 1. Trends in Past Year Inhalant Use and Dependence or Abuse among Adolescents: 2002 to 2007



Figure 1 Table. Trends in Past Year Inhalant Use and Dependence or Abuse among Adolescents: 2002 to 2007 Trend 2002 2003 2004 2005 2006 2007
Past Year Use 4.4% 4.5%* 4.6%* 4.5%* 4.4% 3.9%
Past Year Dependence or Abuse 0.4% 0.4% 0.5% 0.4% 0.4% 0.4%
Source: 2002 to 2007 SAMHSA National Surveys on Drug Use and Health (NSDUHs).



--------------------------------------------------------------------------------
Past Year Initiation of Inhalant Use
--------------------------------------------------------------------------------

In 2007, 2.1 percent of adolescents who had not previously used inhalants began using them during the 12 months prior to the survey (Figure 2). This rate was lower than the rates of initiation for 2002, 2003, 2004, and 2005.

Figure 2. Trends in Past Year Initiation of Inhalants among Adolescents Who Had Not Previously Used Inhalants: 2002 to 2007**



Figure 2 Table. Trends in Past Year Initiation of Inhalants among Adolescents Who Had Not Previously Used Inhalants: 2002 to 2007** Trend 2002 2003 2004 2005 2006 2007
Past Year Initiation of Inhalants 2.6%* 2.6%* 2.6%* 2.6%* 2.4% 2.1%
Source: 2002 to 2007 SAMHSA National Surveys on Drug Use and Health (NSDUHs).



NSDUH also provides data on the first illicit drug initiated among past year initiates.2 In 2007, 17.2 percent of past year illicit drug initiates indicated that inhalants were the first drug that they used (Table 1). Marijuana was the first drug used by 56.3 percent of past year illicit drug initiates; nonmedically used prescription-type drugs were the first type of drug used by 23.5 percent of past year illicit drug initiates. These rates remained relatively stable between 2002 and 2007.

Table 1. Trends for First Drug Initiated in the Past Year among Adolescents Who Initiated Illicit Drug Use in the Past Year: 2002 to 2007** First Drug Initiated*** 2002
(%) 2003
(%) 2004
(%) 2005
(%) 2006
(%) 2007
(%)
Marijuana and Hashish 59.9% 57.6% 57.3% 55.0% 57.1% 56.3%
Nonmedical Use of Prescription-Type Drugs 22.2% 20.4% 21.3% 22.0% 22.0% 23.5%
Inhalants 14.5% 19.4% 19.2% 19.6% 17.4% 17.2%
Hallucinogens 2.9% 2.3% 2.1% 2.5% 3.0% 2.3%
Cocaine 0.7% 0.4% 0.5% 1.0% 0.9% 0.8%
Source: 2002 to 2007 SAMHSA National Surveys on Drug Use and Health (NSDUHs).


--------------------------------------------------------------------------------
Use of Specific Inhalants among Past Year Inhalant Initiates
--------------------------------------------------------------------------------

Among past year inhalant initiates, the percentage using most specific types of inhalants in 2007 did not differ significantly from the percentage in 2002 (Table 2); however, there were a few exceptions. Among past year inhalant initiates, use of nitrous oxide or "whippits" was lower in 2007 than in 2002 (16.3 vs. 31.6 percent), and use of aerosol spray other than spray paint3 was higher in 2007 than 2002 (25.0 vs. 12.6 percent).

Table 2. Trends in Past Year Use of Specific Types of Inhalants among Past Year Inhalant Initiates Aged 12 to 17: 2002 to 2007** Type of Inhalant 2002
(%) 2003
(%) 2004
(%) 2005
(%) 2006
(%) 2007
(%)
Amyl Nitrite, "Poppers," Locker Room Odorizers,
or "Rush" 14.0% 17.0% 12.6% 16.4% 16.5% 19.3%
Correction Fluid, Degreaser, or Cleaning Fluid 15.7% 19.7% 19.6% 19.6% 22.5% 19.3%
Gasoline or Lighter Fluid 26.2% 23.2% 25.3% 26.7% 27.0% 28.1%
Glue, Shoe Polish, or Toluene 32.9% 30.2% 27.6% 31.3% 25.6% 28.8%
Halothane, Ether, or Other Anesthetics 2.9% 2.9% 4.5% 3.4% 4.5% 5.7%
Lacquer Thinner or Other Paint Solvents 13.9% 10.7% 10.8% 13.3% 14.2% 12.8%
Lighter Gases, Such as Butane or Propane 9.3% 9.7% 9.2% 8.1% 7.1% 9.9%
Nitrous Oxide or "Whippits" 31.6% 23.0% 20.1% 21.3% 17.7% 16.3%
Spray Paints 21.4% 23.3% 25.4% 23.9% 28.1% 25.1%
Aerosol Sprays Other than Spray Paints+ 12.6% 17.6% 23.6% 25.4% 23.5% 25.0%
Source: 2002 to 2007 SAMHSA National Surveys on Drug Use and Health (NSDUHs).


--------------------------------------------------------------------------------
Discussion
--------------------------------------------------------------------------------

Although the rates of inhalant use and inhalant initiation appeared to be on a downward trend, particularly since 2005, the rates of dependence on or abuse of these substances remained stable between 2002 and 2007. Rates of use of specific types of inhalants among past year initiates generally did not differ significantly from 2002 to 2007, although a few types showed significant changes. Use of nitrous oxide or "whippits" decreased by half, and use of aerosol sprays other than spray paints doubled. Over the period from 2002 to 2007, 15 to 20 percent of past year illicit drug initiates indicated that inhalants were the first illicit drug they had used.

These findings highlight the ongoing need for prevention and treatment of inhalant use and abuse. Continuing efforts are needed among adolescents and their parents, other family members, teachers, service providers, and policymakers to increase awareness of the dangers of inhalant use. Awareness campaigns and prevention efforts may need targeted messages about the use of specific inhalants, such as aerosol air fresheners, aerosol sprays, and aerosol cleaning products.



--------------------------------------------------------------------------------
End Notes
--------------------------------------------------------------------------------
1 Substance dependence or abuse is defined using criteria in the 4th edition of the Diagnostic and Statistical Manual of Mental Disorders (DSM-IV), which includes symptoms such as withdrawal, tolerance, use in dangerous situations, trouble with the law, and interference in major obligations at work, school, or home during the past year.
2 Illicit drugs refer to marijuana/hashish, cocaine (including crack), inhalants, hallucinogens, heroin, or prescription-type drugs used nonmedically.
3 Aerosol sprays other than spray paint include products such as aerosol air fresheners, aerosol spray, and aerosol cleaning products (e.g., dusting sprays, furniture polish). The aerosol propellants in these products are commonly chlorofluorocarbons. By contrast, nitrous oxide is used as a propellant for whipped cream and is available in 2-inch tapered cylinders called "whippits" that are used to pressurize home whipped-cream charging bottles.


--------------------------------------------------------------------------------
Figure and Table Notes
--------------------------------------------------------------------------------
* Difference between this estimate and 2007 estimate is statistically significant at the .05 level.
** Past year initiates are defined as adolescents who used a drug for the first time during the 12 months prior to the survey.
*** First drug initiated is based on the date of the first use for each drug, with imputation for the day of the month and for the month of the year, if not reported. Respondents may be counted in more than one drug category if they reported initiating multiple drugs on the same day the first time that they used drugs.
+ See End Note 3.


--------------------------------------------------------------------------------
Suggested Citation
--------------------------------------------------------------------------------
Substance Abuse and Mental Health Services Administration, Office of Applied Studies. (March 16, 2009). The NSDUH Report: Trends in Adolescent Inhalant Use: 2002 to 2007. Rockville, MD.

The National Survey on Drug Use and Health (NSDUH) is an annual survey sponsored by the Substance Abuse and Mental Health Services Administration (SAMHSA). The 2002 to 2007 data used in this report are based on information obtained from 136,449 persons aged 12 to 17. The survey collects data by administering questionnaires to a representative sample of the population through face-to-face interviews at their place of residence.

The NSDUH Report is prepared by the Office of Applied Studies (OAS), SAMHSA, and by RTI International in Research Triangle Park, North Carolina. (RTI International is a trade name of Research Triangle Institute.)

Information on the most recent NSDUH is available in the following publication:

Office of Applied Studies. (2008). Results from the 2007 National Survey on Drug Use and Health: National findings (DHHS Publication No. SMA 08-4343, NSDUH Series H-34). Rockville, MD: Substance Abuse and Mental Health Services Administration. Also available online: http://oas.samhsa.gov.

October 04, 2010

Childhood Traumatic Grief

Childhood Traumatic Grief

Childhood traumatic grief is a condition that children may develop after the death of
a significant person under circumstances that have been traumatic for the child.
We are beginning to understand how to identify this condition. In childhood traumatic
grief, a child has reactions and symptoms similar to those found in children
with PTSD. These reactions make it difficult for the child to follow the usual path
of bereavement and reminiscence about the deceased person in a positive and
meaningful way.
There are promising treatments that have been shown to be most helpful for children
with childhood traumatic grief. Treatment can be done with individuals and with groups
of children of different ages, and it should address both trauma and grief symptoms.
Treatment initially involves treating the trauma aspects of the condition and then
moving on to help the child deal with bereavement issues and master specific tasks.
The intervention described in this program draws from a variety of existing approaches.
The treatment includes teaching the child skills for managing stress, helping the child
to create a story about the death, and finally supporting the child while engaging in
specific activities related to bereavement. The goal of the treatment is to enable the
child to remember and cope with previously troubling thoughts and feelings about the
death and go on to have more positive and comforting memories about the person.

OVERVIEW OF CHILDHOOD TRAUMATIC GRIEF
WHAT IS CHILDHOOD TRAUMATIC GRIEF?
After being broadsided, the car was spinning out of control. When it stopped, eightyear-
old Devon, who was buckled up in the back seat and pinned in the car, yelled for
his mother to wake up. He heard the sirens, then watched the paramedics drag his
mother onto the street and saw blood running down her face. Later, whenever he rode
in a car, he refused to put on his seat belt because he wanted to get out as fast as
possible in case of an accident.
Twelve-year-old Anna’s brother drowned in the neighbor’s pool. She had a fight with him
right before he left, teasing the five-year-old about not being able to swim. Later she
frequently had nightmares in which she couldn’t breathe, so she stayed up most of
the night. In school, she was exhausted, sleepy, and couldn’t concentrate. Her grades
plummeted, but she said she didn’t care and deserved whatever punishment she got.

Childhood traumatic grief is a condition in which children who lose
loved ones under very unexpected, frightening, terrifying, traumatic
circumstances develop symptoms of posttraumatic stress and
other trauma symptoms that interfere with their ability to progress
through typical grief tasks, because they are stuck on the traumatic
aspects of the death. —Judith Cohen

Childhood traumatic grief can develop following the death of a significant person
when the death has been perceived by the child as traumatic. The hallmarks of the
condition are reactions related to (1) trauma, a situation that is sudden and terrifying
and that results in death and may have also been life threatening for the child, and
(2) grief, feelings of intense sadness and distress from missing the person who died
and the changes that have resulted. The distinguishing feature of childhood traumatic
grief is that trauma symptoms interfere with the child’s ability to navigate the typical
bereavement process. In other words, a child’s preoccupation and inability to relinquish
a focus on death leaves little or no room for other more helpful thoughts about
the person who died, leaves little emotional energy for adjusting to change, and
compromises the child’s ability to function in school or with friends. According to our
current understanding, childhood traumatic grief is distinct from uncomplicated
bereavement and conditions such as PTSD, yet it shares features of both. The
definition, characteristics, and assessment of childhood traumatic grief are still
evolving and likely vary due to such things as the type of death, age and cognitive
ability of the child, culture and beliefs, and family situation.
The child’s perception, not just the cause of death, plays a key role in determining the
development of symptoms. Not every child develops traumatic grief after a death that
happened in a particularly dramatic or threatening manner, such as death from a homicide,
war, or motor vehicle accident. In some cases, childhood traumatic grief can result
from a death that most would consider expected or normal, such as death from illness
or natural causes. There may be isolated traumatic moments that can be lodged in
the child’s memory, such as seeing a parent in profuse pain, that provoke the child’s
reaction. Childhood traumatic grief can affect children’s development, relationships,
achievement, and later effectiveness in life if not treated or otherwise resolved.

Children loose their developmental momentum that they had been
pursuing. They need support to regain that developmental momentum,
and without the support it often happens that children really stop
gaining these skills that are appropriate for their age, and that has
long-term repercussions. —Alicia Lieberman

The traumatic aspects of the death and the child’s relationship to the person that
died are entwined in such a way that thoughts or reminders of the trauma and
overwhelming painful grief about the person who died are linked together. The child’s
traumatic reaction can stem from the sudden and horrific nature of the death with
or without the child’s life also being in danger. The grief reaction stems from the
sadness of missing the person and all that has changed. The child contends with
the complex mix of trauma and grief. Hence, in providing treatment the clinician must
address both.
A child survivor of a car crash in which her mother was killed may be confronted with
reminders of the smell of rubber and gasoline, the fear of being trapped in the car,
the sight of blood and a mother’s lifeless body, and a caretaker whose absence is felt
every waking moment.
CULTURAL AND INDIVIDUAL VARIATIONS
Communication, expression and behavior following trauma and death can vary according
to one’s race, ethnicity, culture, and religion. It is important to be fully aware of these
variations in order to accurately identify those reactions outside the norm of what is
accepted and that prevent the child from participating fully in productive activities.
For example, intense displays of emotion may be more common in some cultures than
in others, and spiritual beliefs about an afterlife may influence a child’s reactions and
expressions. In some cultures it may be common practice to refrain from using the
name of the deceased for a certain period of time, hence, what may be interpreted
as avoidance in one setting is respectful and necessary in another. Either through
naturally occurring common practices or due to unfortunate war or devastation,
children in different countries may also have more or less exposure to death throughout
their life, which can influence their response. Regarding intervention, you must be
sensitive to instances when certain treatment principles may be contrary to what is
accepted practice in the child’s particular family. For those times when a practitioner is
unfamiliar with a family’s practices and beliefs it is essential to seek consultation or
consider additional referral.

OVERLAP OF CHILDHOOD TRAUMATIC GRIEF,
POSTTRAUMATIC STRESS DISORDER, AND TRAUMA REACTIONS

The typical traumatic stress symptoms that children might experience
with childhood traumatic grief include things like intrusive thoughts
or recurring images associated with the death of their loved one. It
could be the child becoming very constricted emotionally, becoming
numb as a way of not dealing with all the pain associated with the
tragic circumstances of their loved ones death. The child who has
childhood traumatic grief doesn’t have to have all those symptoms,
just some of them. —Anthony Mannarino

There is overlap in the reactions and symptoms of uncomplicated bereavement,
PTSD, and childhood traumatic grief. Children may show different signs of childhood
traumatic grief at different ages. However, difficulties specific to childhood traumatic
grief that can occur across developmental stages include those listed below. Although
the following reactions and symptoms are consistent with characteristics of PTSD,
they are notable as indicators of childhood traumatic grief because of the direct
reference to the traumatic death. A helpful way of understanding the following reactions
is to view them as indicating a child’s distress, communicating to others that the child
is not letting go of thoughts, feelings, and behaviors related to the images, details,
circumstances, and actions surrounding the death.
• Intrusive memories and preoccupations about things that happened before,
during, and after the death: These can appear through nightmares, guilt, or
self-blame about how the person died, or recurrent or intrusive thoughts about
the horrifying manner of death. Thoughts may also focus on wished-for protective
or rescue interventions, such as regret for not doing something that would have
changed the outcome.
A seven-year-old boy keeps thinking he should have done CPR to save the life of
his three-year-old sister who was caught in the crossfire of a drive-by shooting.
• Avoidance and a fear of strong feelings: This can be expressed by withdrawal
or by the child avoiding reminders of the person, the way the person died, or the
event that led to the death. In attempting to keep strong unpleasant feelings
related to the death at bay, the child may also try to dampen all feelings, which
results in what adults would understand as “numbing.”
A 14-year-old girl could not go to any fast-food restaurant after her father was
accidentally shot to death in one while they were getting milkshakes.
• Physical or emotional symptoms of increased arousal: These can include
irritability, anger, trouble sleeping, decreased concentration, a drop in grades,
stomachaches, headaches, increased vigilance, and fears about safety for
oneself or others. The reaction can generalize and occur in a context that
resembles, but is different than, the original situation.
A four-year-old girl started crying and screaming “stop shooting my mommy”
when she heard the fireworks at the park on the Fourth of July.
• Re-enactment: In re-enacting aspects of the events that are perceived to
have led to the death, there is an attempt to intervene, manage feelings of
helplessness, and undo what has been done and identify ways to prevent the
tragedy and death.
A six-year-old bereaved survivor of a motor vehicle crash repeatedly drew and cut
out replicas of the car and steering wheel. He built an oversized speedometer so
the driver of the other car would notice he was driving too fast. The boy went on
to make a car with extra protection that was strong enough to withstand any crash.

HOW IS CHILDHOOD TRAUMATIC GRIEF RELATED TO
OTHER TRAUMA REACTIONS?
Traumatic events can involve an actual death, other loss, serious injury, or threat to
the child’s own life or well-being. These events could include natural or man-made
disasters, violence, war, or accidents. A child may be traumatized by direct exposure,
witnessing the event, or hearing about another person’s experience. For some children,
the response can have a profound effect on how they view themselves and the world.
They may develop changes in their behavior (externalizing problems) or emotional
functioning (internalizing problems). Left untreated, the severe trauma-related reactions
can lead to more serious and chronic difficulties and, in some cases, coalesce into
PTSD. PTSD is diagnosed when the child has specific symptoms that continue for a
month or more following exposure to a traumatic event. The symptoms fall into the
three categories of re-experiencing, hyperarousal, and avoidance.
When children with childhood traumatic grief show reactions and symptoms characteristic of PTSD, the reactions and symptoms are directly related to the death and interfere with the child’s day-to-day functioning and bereavement work. Children may present with other symptoms not necessarily associated with PTSD but related to bereavement and traumatic death. These may include guilt, yearning, anger, and rescue and revenge fantasies.

Eleven-year-old Lisa witnessed her mother’s murder. In an interview with a therapist
five days after her mom was fatally shot and stabbed by her estranged boyfriend, Lisa
revealed her feelings about revenge when describing a dream: “In my dream I had the
same knife he used to stab my mother and the same gun that he shot her with. Then
I went up to him and said ’Do you remember this, now you can feel it’ And I stabbed
him right where he stabbed my mother. Then I said, ’I guess you remember this too,’
and then I shot him.”
It was hard for Lisa to talk about her mother, who she dearly loved, without feeling as
if she was back in that room. In the days and weeks after the murder, when she had
that feeling, she would focus on her mother being killed. But as she stood at the door,
frozen in place, one suspects she worried about herself as well as about her mother
being killed.
In childhood traumatic grief, the interaction of traumatic and grief symptoms is such
that any thoughts or reminders, even happy ones, about the person who died can lead
to frightening thoughts, images, or memories of how the person died.
Kevin, the 17-year-old brother of 15-year-old Briana, was killed in an avalanche. His body
was never found. She was haunted by feelings of guilt for not demanding he stay at the
lodge. She was so distraught that she isolated herself from friends. On further questioning,
it became clear that Briana and Kevin had many of the same friends. So when Briana
was with them, she was reminded of the good times they used to have together. But
this quickly led to her thinking about Kevin suffocating and it being her fault.

Three types of reminders may trigger unpleasant and distressing reactions:
1. Trauma reminders: places, situations, people, sights, smells, or sounds
reminiscent of things associated with the actual death. These may include the
street corner where a fatal accident occurred, the bedroom where a parent died,
or the sound of an airplane reminding a child of a mother who died in a crash.
2. Loss reminders: people, places, objects, situations, thoughts, or memories
that are reminders of particular aspects of the person who died — for example,
photo albums, an empty chair at the dinner table, or a new coach who has
replaced a parent who previously headed a child’s sports team.
3. Change reminders: situations, people, places, or things reminding the child
of changes in his or her life resulting from the death — for example, moving to
a new house or having to walk home with a babysitter rather than an older
sibling who died.
Reminders can certainly provoke sadness or thoughts about the deceased. However,
in childhood traumatic grief, these reminders may lead to the child re-experiencing
the traumatic events that led to the death. The terror associated with these memories
results in increased arousal symptoms. The child then attempts to handle the
distressing re-experiencing and symptoms with avoidance or numbing, often
characterized as a deadening of emotions in older children and a fear of feelings in
younger children. Because traumatic aspects of the death are so upsetting, the child
tries to avoid all reminders of the trauma, loss, or resulting changes so as not to
stir up unpleasant thoughts or feelings.
For example, a younger child may be afraid to sleep alone at night because of
nightmares about a tragic shooting, whereas an older child may avoid flying in a
plane because it brings up painful memories about a father who died in a plane crash.
One of the most common reminders of the trauma, loss, and change is the person’s
own family. Looking across at each other, knowing each has experienced the same
death even if having individual reactions, can be upsetting.

HOW DOES CHILDHOOD TRAUMATIC GRIEF DIFFER
FROM UNCOMPLICATED GRIEF?
Any death can be difficult for a child, and certain reactions are more likely than others.
Uncomplicated bereavement is the intense sadness and longing for the deceased
that children typically feel after the loss of a loved one. Complicated bereavement
has been described in adults as bereavement complicated by separation distress
and traumatic symptoms related to the loss of the security-enhancing relationship
with the deceased. This has not been clearly defined as a condition for children.

Uncomplicated or typical grief reactions in children vary according to age, developmental
level, previous life experiences, culture, beliefs, emotional health prior to the death,
and the family and social environment. Over time, a child is relieved of extreme
sadness and is able to engage in accepted mourning rituals, and, when appropriate,
remember good times and have positive feelings about the person who died. However,
while grieving, a child typically may have:
• Emotional reactions: feeling sad, angry, anxious, numb, lonely, guilty, powerless,
shamed, insecure, and remorseful.
• Changes in behavior: lack of interest and participation in usual activities,
diminished self-care, unpredictable or odd behavior, angry or aggressive
behaviors, increased risk taking, irritability and conflict with others, impulsivity,
regression to earlier behaviors, changes in sleep behaviors (increased or
decreased), difficulty sleeping or sleeping alone, changes in appetite (increase
or decrease in weight), and changes in physical health.
• Difficulty with interpersonal interactions: withdrawal, social isolation, peer
difficulties, clinging, irritability, difficulty sharing memories, difficulty participating
in group or athletic activities, and general lack of interest in others.
• Changes in thinking: constant thoughts and memories about the loved one,
persistent thoughts about the death, disbelief about the death and the finality
of the death, constant or intrusive thoughts about death, preoccupation with
one’s own or a loved one’s physical health and safety, difficulty making decisions,
confusion, impaired memory and concentration, lowered self-esteem and selfconfidence,
disillusionment, thinking that the death was one’s fault, and
survivor guilt.
• Altered perceptions: believing the deceased is still present, feeling the person’s
presence nearby, seeing the person’s face in a crowd, smelling the person’s
perfume, hearing the person’s voice, and experiencing vivid dreams about
the person.
• Physical reactions: susceptibility to illness, loss of energy, fatigue, difficulty or
changes in eating, physical complaints, and changes in physiological arousal
(for example, increased heart rate, respiration, and startle response).
• Changes in academic functioning: poor school performance, difficulty studying
or concentrating, and potential school failure.

In nontraumatic bereavement, kids may be sad, or upset, or feel lonely,
but they are able to continue on with activities and eventually maybe
enjoy life again and be re-engaged with people and situations. The child
with traumatic grief is kind of stuck, so a child may not want to be
around a cousin who is the same age as a sister who died because
it’s too upsetting, or a boy may not want to play baseball anymore
because he can’t bear the thought of looking in the stands and his
father not being there, and he falls apart. So these things segue into
the awful reminders, and the child then avoids every reminder, even a
positive one. —Robin Goodman

Throughout their lives, children continue to adjust to the loss and develop new ways
of coping. Over time, it is helpful for children to relate to their loss by engaging in,
and mastering, certain bereavement tasks. The following chart presents the outcome
of common bereavement tasks and how childhood traumatic grief interferes with
completion of these tasks.

Completion of Bereavement Tasks for Children with Uncomplicated Grief
and Indicators of Difficulty for Children with Childhood Traumatic Grief
In uncomplicated bereavement typically
children will:
Accept the reality and permanence of
death
Experience and cope with difficult
emotional reactions
Adjust to changes in their lives and
changes in their identity that result from
the death
Develop new relationships or deepen
existing ones
Childhood traumatic grief interferes
with bereavement due to:
Difficulty with accepting or unwillingness
to accept that the person has died due
to associations of the death with the
traumatic circumstance
Intense, distressing feelings that are
triggered by reminders leading to
avoidance or lack of feelings
Changes that lead to unpleasant reminders
of the way the person died, possible
overidentification with the person who
died, feeling overly responsible
Feelings such as guilt, anger, and
revenge interfering with the formation
of new relationships

In uncomplicated bereavement, children may feel sad when remembering the
deceased person but are generally able to have positive memories of the person and
continue with necessary life activities. It is important to keep in mind that bereaved
children are at risk for other types of mental health problems such as depression,
anxiety, and substance abuse either alone or in conjunction with childhood traumatic
grief. In childhood traumatic grief specifically, the terrifying and frightening aspects
of the death are so prominent that they get in the way of adjusting to life in ways that
are deemed helpful for the bereaved. Because positive memories of the person
who died lead directly to frightening reminders of the death, without help, the child
never reaches the point of finding comfort in memories, calling up better times, or
participating in what are culturally customary mourning practices. The child may also
have been unable to participate or benefit from various rituals used to ease grief, for
example, avoiding a funeral or being unable to cry for many months. In childhood
traumatic grief, the traumatic reactions make it difficult for the child to
• reminisce or enjoy positive memories of the deceased person when that is
deemed comforting in the child’s culture,
• cope with the many life changes that occur as a result of the death, and
• continue with normal development in ways that are expected and necessary.

In uncomplicated bereavement typically
children will:
Maintain a continuing, healthy
attachment to the deceased person
through remembrance activities
Find some meaning in the death and
learn about life or oneself
Continue through the normal
developmental stages
Childhood traumatic grief interferes
with bereavement due to:
Difficulty or avoidance of positive memories
because they are linked to horrible images
and upsetting thoughts and feelings
Inability or resistance to moving past
the terrifying, unpleasant aspects of
the death, negative feelings about self
related to the death or person
Emotional reactions and resulting
behavior, e.g., withdrawal, anger, and
distrust, interfering with the ability
to engage in positive, age-appropriate
activities and relationships
WHO SUFFERS FROM CHILDHOOD TRAUMATIC GRIEF?
Children can develop childhood traumatic grief when they experience the death of a
significant person, such as a parent, a sibling, or a close friend. Children of all ages,
even a young preschooler, can have a traumatic reaction to a death, especially of a
primary caregiver. It is estimated that five percent of all children in the United States
experience the death of a parent before the age of 15, and children under the age of
three are often present when a sibling or parent dies in a traumatic circumstance,
making young children particularly vulnerable and in need of attention.
However, not all children who have experienced a death develop childhood traumatic
grief. In fact, many recover and do well over time. Although it is true that the majority
of children who experience a death do not develop childhood traumatic grief, the
number of children who do struggle with childhood traumatic grief is quite significant.
For example, up to 70 percent of children in inner city communities have seen
someone shot or stabbed. Even if only five percent of these children develop childhood
traumatic grief, this translates into thousands of children developing this condition
each year. Although all children witnessing a homicide are likely affected in some way,
some are better able to tolerate the experience, whereas others are deeply impacted
and cannot continue on as well as before the death.

May 18, 2010

National Strategy for Suicide Prevention

National Strategy for Suicide Prevention:
Goals and Objectives for Action

--------------------------------------------------------------------------------

Preface from the Surgeon General:
Suicide exacts an enormous toll from the American people. Our Nation loses 30,000 lives to this tragedy each year, another 650,000 receive emergency care after attempting to take their own lives. The devastating trauma, loss, and suffering is multiplied in the lives of family members and friends. This document, National Strategy for Suicide Prevention – Goals and Objectives for Action, lays the foundation of our Nation's strategy to confront this serious public health problem.

At this document's source are countless dedicated individuals representing every facet of our Nation's communities. They include representatives to a 1993 United Nations/World Health Organization Conference who played key roles in establishing guidelines for national suicide prevention strategies. They include the passionate grassroots activists whose work stimulated Congressional Resolutions declaring suicide prevention a national priority and calling for our own national strategy. They include dedicated public servants and private individuals who jointly organized and participated in the first National Suicide Prevention Conference in 1998 to consolidate a scientific base for this critical endeavor. These people and their efforts led directly to publication of the Surgeon General's Call to Action to Prevent Suicide - 1999 with its most important recommendation, the completion of the National Strategy for Suicide Prevention.

After listening to the concerns of the American people, Government leaders helped bring stakeholders together in a shining example of public- private collaboration to achieve this major milestone in public health. Those who have invested their hearts and minds in this effort believe it effectively points the way for organizations and individuals to curtail the tragedy of suicide and suicidal behavior. Though it does not specify all the details, it provides essential guidance and suggests the fundamental activities that must follow–activities based on the best available science.

Nearly half of the States are engaged in suicide prevention and many have already committed significant resources to implement programs. Their leadership in evaluating the effectiveness of these programs will help guide the efforts of States that follow in their paths. Most of these plans recognize that much of the work of suicide prevention must occur at the community level, where human relationships breathe life into public policy. American communities are also home to scores of faith-based and secular initiatives that help reduce risk factors and promote protective factors associated with many of our most pressing social problems, including suicide.

As you read further, keep in mind that the National Strategy for Suicide Prevention is not the Surgeon General's strategy or the Federal government's strategy; rather, it is the strategy of the American people for improving their health and well-being through the prevention of suicide. I congratulate each person who played a role in bringing it to completion. You have served your fellow Americans well.

Sincerely yours,
David Satcher, M.D., Ph.D.
Surgeon General

May 04, 2010

Family Psychoeducation

Family Psychoeducation
Workbook
Chapter 12: Readings and Other Resources
Essential Readings For Practitioners

The following four books are recommended references for those wanting to master this approach. The first includes key elements of the Anderson and Falloon approach and should be read first. The Miklowitz, et al., book is an important reference for those working with consumers with bipolar disorder.

McFarlane, W.R., Multifamily Groups in the Treatment of Severe Psychiatric Disorders, New York, NY, Guilford, 2002.

Anderson, C., Hogarty, G., Reiss, D., Schizophrenia and the Family, New York, NY, Guilford Press, 1986

Falloon, I., Boyd, J., McGill, C., Family Care of Schizophrenia, New York, NY, Guilford Press, 1984.

Miklowitz, D.J., Goldstein, M., Bipolar Disorder: A Family-focused Treatment Approach, New York, NY, Guilford Press, 1997

Additional Resources For Practitioners

Amenson, C., Schizophrenia: A Family Education Curriculum, Pacific Clinics, 1998.
Provides 150 slides with lecture notes for a class for families with a member with schizophrenia. Includes information about the illness, medication and psychosocial treatments and the role of the family in promoting recovery.


Amenson, C., Schizophrenia: Family Education Methods, Pacific Clinics, 1998.
Companion handbook to Schizophrenia: A Family Education Curriculum provides methods for forming a class, optimizing the learning of families, and dealing with typical problems that arise in conducting family classes.


Mueser K, Glynn S: Behavioral Family Therapy for Psychiatric Disorders. Oakland, New Harbinger Publications, 1999
A comprehensive model of single-Family Psychoeducation that includes a multifamily discussion/support group. The book contains individual educational handouts for various psychiatric diagnoses and handout for various related topic areas.
Psychopharmacology

The Essential Guide to Psychiatric Drugs by J. Gorman, St. Martin’s Press, 1995.
Written for a sophisticated consumer, it is the most accessible source of information about psychotropic medications. It distills the Physician’s Desk Reference into understandable language. It describes the individual “trees” (such as Prozac) in the forest of medicines. “The benzodiazepines: Are they really dangerous?” is a typical section heading.


Medicine and Mental Illness by M. Lickey and B. Gordon, Freeman, 1991.
A scholarly yet readable work written for professionals, it is best at teaching the principles of diagnosis, neurophysiology and psychopharmacological treatment of mental illness. It describes the “forest” of psychopharmacology, why it is there and how it works. “The blockade of dopamine receptors and antipsychotic potency” is a typical section heading. It does not discuss the profiles of individual medications.
Cultural Competence

The Cross-Cultural Practice of Clinical Case Management in Mental Health edited by Peter Manoleas, Haworth Press, 1996.
A collection of useful articles about the role of gender, ethnicity, and acculturation in treatment seeking and response. Provides guidelines for engaging and intervening with specific ethnic and diagnostic groups in varying treatment contexts.
Videotapes

Schizophrenia Explained by William R. McFarlane, M.D. Produced by, and order from, the author at Maine Medical Center, 22 Bramhall Street, Portland, ME 04102. (Phone 207-871-2091). mcfarw@mmc.org
This provides a full review in lay language of the psychobiology of schizophrenia, emphasizing the key concepts in Family Psychoeducation: stress reduction, optimal environments and interactions for recovery, and support for the family’s ability to contribute to recovery in many ways. It is often used in lieu of a psychiatrist during Family Education Workshops and for staffs of case management programs, community residences and employment programs to help them understand how to assist consumers with this disorder.


Exploring Schizophrenia by Christopher S. Amenson, Ph.D. Produced by the California Alliance for the Mentally Ill (Phone 916-567-0163).
This videotape uses everyday language to describe schizophrenia and give guidelines for coping with illness for consumers and their families.


Surviving and Thriving with a Mentally Ill Relative by Christopher Amenson, Ph.D., Third edition 1998.
Eighteen hours of good “home video quality” videotapes cover schizophrenia, bipolar disorder, major depressive disorder, medication, psychosocial rehabilitation, relapse prevention, motivation, and family skills. Order from Paul Burk, 1352 Hidden Springs Lane, Glendora, CA 91740. (Phone 626-335-1307).


Critical Connections: A Schizophrenia Awareness Video produced by the American Psychiatric Association, 1997.
This 30 minute video was designed by the APA to help consumers and families cope with the disabling effects of schizophrenia. It provides a hopeful, reassuring message about new medications and psychosocial treatments that assist with recovery.


Exploring Bipolar Disorder by Jerome V. Vaccaro, M.D., 1996
One hour professional quality videotape describes the illness, recovery, and the role of the family. Persons with the illness contribute valuable insights. Produced by and ordered from the California Alliance for the Mentally Ill, 1111 Howe Avenue, Suite 475, Sacramento, CA 95825. Phone 916-567-0163.
Periodicals

Schizophrenia Bulletin
Highly technical and difficult to read but it is the ultimate source for research findings. The fall 1995 issue summarizes “Treatment Outcomes Research”.


Psychiatric Services
Practical articles in all aspects of mental illness. Brief clinically relevant articles on medication and other treatments. The most useful periodical for clinical staff.


Psychosocial Rehabilitation
Practical psychosocial rehabilitation articles. Easy to read and understand. Provides “how to” details. Contains good consumer written articles.
Other Resources

There are a number of excellent books written for persons with a mental illness and their families to help them understand and deal with these illnesses. Many of these are helpful for professionals directly and all are important resources to which to refer patients and families. (See Reading List for Families.) Many of the professional and family books are offered at a discount by The National Alliance on Mental Illness, 200 N. Glebe Road, Suite 1015, Arlington, VA 22203-3754. Phone 703-524-7600.

Books on Mood Disorders (Bipolar and Unipolar Depressions)

A Brilliant Madness: Living with Manic Depressive Illness by Patty Duke and Gloria Hochman. (Bantam, 1992)
Combines personal experience with clinical information to describe manic depression in understandable terms and provide guidelines for coping with it.


Control Your Depression by Peter Lewinsohn, Ricardo Munoz, Mary Ann Youngren, and Antonette Zeiss.(Prentice Hall, Englewood Cliffs, New Jersey, 1979)
Self-help book which assesses contributors to depression and includes activities, relaxation techniques, thinking, social skills, self-control, and specific ideas and exercises for each problem area.


The Depression Workbook by Mary Ellen Copeland. (Harbinger, 1992)
Assists individuals in taking responsibility for wellness by using charts and techniques to track and control moods. The most complete and useful self help book for bipolar and unipolar depressions.


The Feeling Good Handbook by David Burns, (Penguin, New York, NY, 1989)
Self-help book presents rationale for cognitive therapy for depression. Gives specific ideas and exercises to help change thought patterns associated with depression and other problems.


Lithium and Manic Depression: A Guide by John Bohn and James Jefferson.
A very helpful guide for people with manic depression and their families regarding lithium treatment. Order from Lithium Information Center, Department of Psychiatry, University of Wisconsin, 600 Highland Ave., Madison, WI 53792.


Our Special Mom and Our Special Dad by Tootsie Sobkiewicz (Pittsburgh: Children of Mentally Ill Parents, 1994 and 1996)
Two interactive storybooks that allow primary school age children to understand and identify with the problems associated with having a mentally ill parent. Can be well utilized by a relative or therapist in individual or group work.


Overcoming Depression, Third Edition by D. & J. Papolos (Harper & Row, 1997).
A comprehensive book written for persons suffering from manic depression and major depression, as well as their families. It is the best source of information about these disorders. Does not offer coping strategies. This book and The Depression Workbook are the best two to read.


An Unquiet Mind by Kay Redfield Jamison
A compelling and emotional account of the author’s awareness, denial, and acceptance of her bipolar disorder. It offers hope and insight regarding recovery for anyone who reads it.
Books on Dual Diagnosis (Mental Illness and Substance Abuse)

Alcohol, Street Drugs, and Emotional Problems: What you need to know by B. Pepper and H. Ryglewicz.
These informative pamphlets come in versions for the client, for the family and for professionals. They can be ordered from TIE Lines, 20 Squadron Blvd. Suite 400, New York, NY 10956.


Lives at Risk: Understanding and Treating Young People with Dual Disorders by B. Pepper and H. Rygelwicz
Poignant description of the combination of schizophrenia, mood disorders, and/or personality disorders with substance abuse. Strong on empathy and understanding of the multiple problems. Provides little specific guidance.


Hazelden Publications (RW9 P.O. Box 176, Center City, MN 55012-0176 Phone 1-800-328-9000 or Website www.htbookplace.org
Publishes a large number of pamphlets and self-help books on substance abuse and dual diagnoses. Examples of titles include:
Preventing Relapse Workbook
Taking Care of Yourself: When a family member has a dual diagnosis
Twelve Steps and Dual Disorders
Understanding Schizophrenia and Addiction
Books About Children Who Have a Mental Illness

Children and Adolescents with Mental Illness: A Parents Guide by E. McElroy (Woodbine House, 1988)
Useful guide written by a psychologist who heads the NAMI Children’s and Adolescent network.


Educational Rights of Children with Disorders: A Primer for Advocates by Center for Law and Education. (Cambridge 1991.)


Neurobiological Disorders in Children and Adolescents by E. Peschel, R. Peschel and C. Howe. (Oxford Press, 1992)
Biological mental illnesses among children are less common and less understood “family problems”. This book helps to define childhood neurobiological disorders and gives guidance for finding appropriate treatment.
Books on Special Topics

Planning for the Future and the Life Planning Workbook by L. Mark Russell and Arnold Grant (American Publishing Company, 1995)
This book and accompanying workbook are guides for parents seeking to provide for the future security and happiness of an adult child with a disability following the parents’ deaths.


A Parent’s Guide to Wills and Trusts by Don Silver. (Adams-Hall, 1992)
Information on how to protect a disabled child’s financial future, written by an attorney and NAMI member.


Schizophrenia and Genetic Risks by Irving Gottesman.
This pamphlet contains detailed information about this single topic. It may be ordered from NAMI.


A Street is Not a Home: Solving American’s Homeless Dilemma by Robert Coates. (Prometheus, 1990)
Analysis and guide to dealing with homelessness among persons suffering from mental illness.


Suicide Survivors: A Guide for Those Left Behind by Adina Wrobleski. (Afterwards, 1991.)
With an understanding attitude, the author explores and offers coping suggestions for the many issues that confront families who have had a member kill himself.


Reading List For Families With A Member Who Has A Mental Illness
(Annotations by Christopher S. Amenson, Ph.D.)

Books Which Offer Guidance To Families

Coping with Schizophrenia: A Guide for Families by Kim Mueser and Susan Gingerich. (New Harbinger, 1994)
Comprehensive guide to living with schizophrenia and the best source for practical advice on topics including medication, preventing relapse, communication, family rules, drug use, and planning for the future. Includes forms and worksheets for solving typical problems.


Schizophrenia: Straight Talk for Families and Friends by Maryellen Walsh. (Morrow & Co., 1985).
A parent who, as a professional writer, thoroughly researched the field writes this book. This book is emotional in ways that will touch you and deals with all the issues important to families of persons of schizophrenia. If you can read only one book, select this one if you want to feel understood; select Understanding Schizophrenia to access current research on causes and treatments; select Coping with Schizophrenia if you want concrete advice about coping with the illness.


Surviving Schizophrenia: A Family Manual, Third Edition by E. Fuller Torrey. (Harper & Row, 1995).
Beloved by the Alliance for the Mentally Ill because it was the first book in 1983 to support and educate families. Contains one of the best descriptions of “The Inner World of Madness”. Discusses the major topics in easy to read and very pro-family language.


Troubled Journey: Coming to Terms with the Mental Illness of a Sibling or Parent by Diane Marsh and Rex Dickens (Tarcher/Putnam, 1997)
The best book for siblings and adult children. Helps to recognize and resolve the impact of mental illness on childhood. Seeks to renew self-esteem and improve current family and other relationships.


Understanding Schizophrenia: A Guide to the New Research on Causes and Treatment by Richard Keefe and Philip Harvey. (The Free Press, 1994)
The best description of research on schizophrenia as of 1994. It provides more depth and detail than Surviving Schizophrenia and is a little more difficult to read. A must for families that want to understand the science of schizophrenia.


How to Live with a Mentally Ill Person: A Handbook of Day-to-Day Strategies by Christine Adamec. (John Wiley and Sons, 1996)
This comprehensive, easy-to-read book is written by a parent. It reviews methods for accepting the illness, dealing with life issues, developing coping strategies, negotiating the mental health system, and more.
Books Describing The Experience of Schizophrenia

Anguished Voices: Siblings and Adult Children of Persons with Psychiatric Disabilities by Rex Dickens and Diane Marsh (Center for Psychiatric Rehabilitation, 1994.)
Collection of 8 well-written articles which describe the impact of mental illness on siblings and children. A poignant statement of the issues across the life span that need to be addressed when a person grows up with mental illness in the family.


Crazy Quilt by Jocelyn Riley (William Morrow, 1984)
Fictional account of a 13-year-old girl whose mother has schizophrenia. Written for children and adolescents. Provides understanding for these forgotten victims.


Is There No Place on Earth for Me? by Susan Sheehan. (Houghton-Mifflin, 1982.)
A very realistic depiction of the experience of schizophrenic woman is interwoven with information about legal, funding, and treatment issues. Gives a good description of historical and political influences on the treatment of persons suffering from schizophrenia. Won the Pulitzer Prize.


Tell Me I’m Here: One Family’s Experience with Schizophrenia by Ann Devesch. (Penquin, 1992)
Written by a United Nations Media Peace Prize winner and founder of Schizophrenia Australia, this book describes their family’s experience.


The Quiet Room by Lori Schiller. (1994)
The life story of a person who had an almost full recovery from schizophrenia with clozapine. Great for its inspirational value.


The Skipping Stone: Ripple Effects of Mental Illness on the Family by Mona Wasow (Science and Behavior Books, 1995)
Describes the impact of mental illness on each member of the family in a “Tower of Babel”. Information is from in-depth interviews with family members and professionals.


The Girl with the Crazy Brother by Betty Hyland (Franklin Watts, 1986)
Written for adolescents by an Alliance for the Mentally Ill member. Describes in short novel form the experience of a teenage girl trying to understand the sudden deterioration of her older brother.
Website resources

April 05, 2010

Depression and Mood Disorders

Depression and Mood Disorders
The Prevalence of Major Depression and Mood Disorders in Suicide

Mental Health: A Report of the Surgeon General, states that "major depressive disorders account for about 20 to 35 percent of all deaths by suicide" (p. 244). This estimate is based on a review of psychological autopsies conducted by Angst, Angst, and Stassen (1999). This brief review is intended to address this prevalence estimate. It is important to note that this estimate refers only to the prevalence of major depressive disorder among those who commit suicide, not any other mood disorders (e.g., bipolar I & II, dysthymia, adjustment disorder with depressed mood). Prevalence estimates that include other mood disorders in addition to major depression are much higher.

Major depression in suicide
The lower bound of the 20-35% estimate of the prevalence of major depression in suicide is loosely based on one psychological autopsy study; a study where the reliability of the diagnoses are somewhat questionable. This study (Rich, Young & Fowler, 1986) of 204 subjects identified 15% of suicides as having major depressive disorder. However, an additional 30% were reported as having "atypical depression," defined in this study as having a depressive syndrome that followed the onset of substance use. If this ambiguously defined group were to be considered major depression, the estimate climbs to 45%. A number of other studies suggest that the prevalence of major depression in suicide is somewhat over 30%. The four other available psychological autopsy studies that include samples of suicides from the full age range and reliable diagnoses based on structured interviews (Arato, Demeter, Rihmer & Somogyi, 1988; Dorpat & Ripley, 1960; Foster, Gillespie, McClelland & Patterson, 1999; Henriksson et al., 1993) obtained prevalence estimates of major depression ranging from 30-34% of suicides. In addition, several psychological autopsy studies examining more specific subsamples (e.g., the elderly, adolescents, women) find even higher prevalence estimates. In three psychological autopsy studies of adolescents (Brent et al. 1988; Brent et al., 1999; Shaffer et al., 1996) 41%, 43%, and 32% of adolescent suicides were determined to have had major depression prior to death. Two studies of young adults (Lesage et al. 1994; Runeson, 1989) found a prevalence of 40% and 41%, respectively. A study of 104 women by Asgard (1990) found a 35% rate of major depression. One study of 54 older adults over age 65 found a prevalence of 54%. In summary, the available data suggest that the 20-35% estimate for the prevalence of major depressive disorder in completed suicide is probably somewhat conservative and that a 30-40% prevalence estimate is probably more accurate. This estimate includes both secondary and primary depression. Many of these individuals would also be comorbid with other disorders, especially substance abuse.

Mood disorders in suicide
Prevalence estimates for all mood disorders in suicide (including MDD, Bipolar I & II, dysthymia, and adjustment disorder with depressed mood) are much higher than for major depression alone. These rates are probably closer to 60%, although as noted below, this estimate varies because of inconsistency of the criteria used to define a "mood disorder" across investigations. Four studies examining the full age range of suicides estimate that 36%, 48%, and 66%, and 70% of suicides have some sort of "depressive disorder" or "depression" (Foster et al., 1999; Rich et al., 1986, Henriksson et al., 1993, Barraclough, Bunch, Nelson, & Sainsbury, 1974). Three studies of adolescents found prevalence estimates for "mood disorders" or "affective disorders" of 61%, 63%, and 67% respectively (Shaffer et al., 1996; Brent et al. 1988; Marttunen et al., 1992). Two studies of young adults (Lesage et al., 1994; Runeson, 1989) found estimates of 60% and 64%. A study of 104 women by Asgard (1990) found a 59% rate of "mood disorders." In a review of psychological autopsy studies that examined patterns of psychiatric diagnosis across age groups, Conwell and Brent (1995) concluded that depressive disorders increased with age. Overall estimates for the rates of mood disorders range from 36% to 70% with great interstudy variability. This variability is probably partly a combination of unreliable methods of diagnosis and different definitions of what constitutes a "mood disorder." Despite this variability, a number of studies have found a pattern for increasing mood disorders with aging.

March 22, 2010

Health Service Disparities: Access, Quality, and Diversity

Online CEUs

Health Service Disparities: Access, Quality, and Diversity
CHAIR: Spero M. Manson, Ph.D., University of Colorado.

ACCESS, BARRIERS, and QUALITY
Pathways into, through, and out of service systems are issues of critical importance when addressing access to care, adequacy or appropriateness of care, as well as quality. This panel addressed these issues examining the impact of race, ethnicity, and cultural attitudes.

David T. Takeuchi, Ph.D.,
Indiana University

Dr. Takeuchi discussed the importance of race as a separate and independent factor in children's mental health status, as well as access to and quality of care. Over the past two decades, it has been common to advocate for a more universal approach to resolving the disparities found among racial groups. Despite one's position regarding whether race has or has not declined in significance in American society, an advocacy for policies that attempt to reduce socio-economic status (SES) differentials is seen as a more effective public policy strategy to gain acceptance among all racial groups and, equally important, policy makers.

While this approach is popular and well meaning, it tends to ignore an evolving body of research that finds race to have a strong effect on mental health variables, independent of SES. For example, a recent study assessing health outcomes for 50 states found a strong association between racial composition and health. The greater the minority composition, the poorer the child health profiles. When race was included in analytical models, income and equality did not have a significant association with child health outcomes. Another significant variable linked to improved child health outcomes was the willingness of states to fund social welfare programs. These analyses suggest that simply focusing on income inequality will not resolve racism and its consequences. Racism is a continuous problem and creates a social environment characterized by alienation, frustration, powerlessness, stress and demoralization, all of which can have pernicious consequences on mental health. There are programs that are trying to make health systems more equitable through education, and attempting to reduce stereotypes and prejudice by providing information about different racial groups. Research indicates, however, that individuals who have preexisting racist beliefs may actually have these beliefs reinforced through such educational programs.

In order to address ethnic and racial inequities in children's mental healthcare, racism must be viewed in a broader context, focusing on institutional racism and the racial hierarchy of society and its systems, including healthcare. It is unclear how to do this, but two examples to consider would be Native Americans' building casinos to address economic inequity; and Native Hawaiians' current effort to achieve sovereignty. These are two natural situations in which it can be seen how health outcomes will be influenced.

Margarita Alegría, Ph.D.,
University of Puerto Rico

Dr. Alegría discussed challenges in advancing equity in mental healthcare for children of color. She presented three arguments for increased focus on racial and ethnic differences. First, race, ethnicity and culture of children play a major role in shaping the care provided to them by health institutions. Racial, ethnic and cultural differences influence the expression and identification of the need for services. Studies have shown ethnic and racial differences in youths' self-reports of problem behaviors, caregivers' value judgments of what is normative behavior, and caregiver expectations of the child. Ethnic and racial bias in who gets identified, referred and treated within certain institutions has also been documented. For example, African American youth are more frequently referred for conduct problems to corrections rather than psychiatric hospitals, even with lower or equal measures of aggressive behavior. Quality of care is also impacted. For example, ADHD is less often treated by medications in minority groups than in white populations. There is also increased probability of misdiagnoses among minority individuals, affecting subsequent care.

Second, there are challenges in identifying the mechanisms by which ethnicity, race, and culture account for disparities in behavioral and emotional problems and service delivery. Understanding these mechanisms has important implications for how to intervene correctly. Factors that mediate such challenges may be related to lack of early detection by providers and parents; untrained and culturally insensitive providers; and lack of parent and provider knowledge of efficacious treatments. For example, Latino youths have the highest rate of suicide, yet they are less likely to be identified by their caregivers as having problems. Disparities in services may be due to different barriers such as insurance status and settings where mental healthcare is delivered. Minority children tend to receive mental health services through the juvenile justice and welfare systems more often than through schools or special settings.

Third, efforts to address racial and ethnic disparities in mental health and service delivery are constrained by profound socio-environmental, institutional, and market forces. For example, managed care, by targeting medical necessity, may be constrained in obtaining the complexity of funding streams that are necessary to service minority children in the schools, juvenile justice settings or welfare agencies. Expansion of Medicaid eligibility for near poor families may not prove sufficient to increase mental health service usage, if it is not tied to increased provider availability and provider payment incentives to treat minority populations within depressed inner-city communities. Thus, a critical analysis of how residential, institutional, and market policies may create disparities is needed, and more importantly, how these policies are implemented in ways that result in disparities. There is a need to address these disparities by moving beyond the healthcare sector, examining neighborhoods where minority children live (areas of economic disadvantage, concentration of violence in certain areas), addressing the institutions with which minority children interact (i.e., the referral bias in the various systems), and addressing the role of managed care and the lack of culturally competent providers in the various systems.

Suggestions to address these disparities include: (1) Ensure that efforts focus not only on equalizing access to treatment, but also on equalizing outcomes of care; (2) Aggressively monitor institutional progress towards an equitable and compassionate system of mental healthcare for children of color; and (3) Move beyond policy interventions in the healthcare system to more socio-educational approaches, where government agencies are not agents of control but agents of support.

Kenneth B. Wells, M.D., M.P.H.,
UCLA/RAND

Dr. Wells presented new preliminary data from three national surveys on access to specialty mental healthcare. The findings demonstrated high levels of unmet need for specialty care for children and adolescents and substantial ethnic disparities in access to such care. Detailed findings will be presented in a forthcoming article. Dr. Wells also drew attention to key issues in formulating public policy to address unmet need for child services. One set of issues relates to children in the public sector, where differences within and across states in implementation of policies to cover uninsured children result in children with varying degrees of vulnerability to unmet need for mental healthcare. Policies that guarantee coverage for uninsured children across diverse populations and geographic areas are needed to address this problem. Another set of issues applies to the private sector, where there has been much debate about the feasibility of implementing parity for mental health and physical health services for both children and adults; yet prior studies suggest that children have more to gain from parity, as they tend to be high utilizers if they use services and more quickly reach plan limits on coverage (Sturm, 1997). Thus achieving parity of coverage in the private sector may be especially important for addressing the unmet need for child mental health services. Yet, Dr. Wells indicated that the meaning of parity is changing under managed care, as the defined benefit does not necessarily directly correspond to the level of care provided under management policies (Burnam and Escarce,1999). Finally, Dr. Wells provided an example of the promise of quality improvement for mental disorders for adults, Partners in Care; in that study, depressed primary care patients from clinics using quality improvement programs had better one-year clinical outcomes and retention in employment than similar patients in clinics without quality improvement programs (Wells, et. al., 2000). These kinds of studies should be developed for children and adolescents with major mental disorders, as we develop practice-based solutions across public and private sectors to address unmet mental healthcare needs of diverse child and adolescent populations.

Suggestions for future research include: (1) Develop access and mental health quality of care indicators for children and adolescents; (2) Profile unmet need for under- and uninsured subgroups in particular areas, in light of disparity in coverage and implementation across federal and state programs; and (3) Monitor access and quality of care for children and adolescents nationally. Suggestions for policy changes include: (1) For the uninsured, replace existing programs or fill the diverse gaps in federal and state policies; (2) For the privately insured, start with parity of mental health coverage with medical conditions, and enforce tougher mandates for implementation. In addition, the management and quality under parity needs to be evaluated; and (3) For the publicly insured, implement quality improvement, and reduce delays and the financial barriers to mental healthcare.

REACHING OUT TO AND ENGAGING FAMILIES
This panel discussed the challenges affecting access to and coordination of mental healthcare for children and families, including the lack of availability of non-traditional services. One critical question addressed how to better engage families in evidence-based services and treatments.

Barbara J. Friesen, Ph.D.,
Portland State University

Dr. Friesen argued that effective mental health services require cultural competence, full family participation and appropriate services and supports. Family support and participation can provide benefits, including reduced need for inpatient treatment, shorter length of inpatient stay, better service coordination, increased likelihood that a child will return home following out-of-home placement, and increased caregiver satisfaction. When families were involved in the child welfare system, they were more likely to follow through with treatment and the caseworkers were more likely to provide appropriate care.

There are several significant barriers to family participation and effective treatment for children's psychiatric disorders. First, stigma attached to mental disorders results in families feeling at fault for their child's mental illness. Low-income families are most likely to receive disrespect from healthcare providers. Second, family and service providers lack information. Third, gaps in services are a major problem. Even when a family is armed with information about exactly what they are looking for, very often they cannot find it. Other practical, tangible barriers include cost; many families have gone bankrupt trying to care for their children. The most damaging policy is one in which parents need to give up custody in order to get services for their children. Distance can also be a barrier to care. Sometimes families must travel long distances to receive appropriate care for their child.

Suggestions for engaging families include: (1) Develop anti-stigma campaigns to educate the public and healthcare providers; (2) Train services providers in effective, family-centered treatment approaches; (3) Support family members and family organizations who can improve access to services through a variety of outreach and support roles; and (4) Evaluate these practices.

C. Veree’ Jenkins,
Family Involvement Coordinator, Family HOPE, West Palm Beach, Florida

Ms. Jenkins described her family's experience overcoming the ravages of the mental illness of her son, Joel. She called it the story of "J.O.E.L.: Joy Overcoming Everything Logical." She emphasized the importance of faith in dealing with a child's mental illness. Joel had a journey through mental illness, substance abuse, the juvenile justice system and early fatherhood. All along the way, no one ever asked the family their faith and what they believed in, said Ms. Jenkins. In a substance abuse treatment program, Joel had his bible taken from him, told it was a crutch preventing him from overcoming his substance abuse problems. But, Ms. Jenkins said, you need faith in God to make it through these systems; you put faith in the hands of the therapist managing your care and sometimes are let down. Finally, Joel went to the church where he found ‘wrap-around faith’ where they provided mentoring, counseling services 24 hours a day, seven days a week, helped him get a job, and get rid of his guns and provided other assistance. Ms. Jenkins encouraged consideration of faith-based organizations, which can provide safe havens, camps, music, art, and all sorts of activities that can be very helpful to a family in need. Joel is now drug, alcohol and cigarette free. He is a law-abiding citizen, married, a good parent, employed and owns his home. A recent graduate of the McCollough Seminary, he is Assistant Youth Pastor of his church. As a family, Joel, Ms. Jenkins and her husband work together to share their faith and hope with others.

Lynn Pedraza, Ed.S.,
Family Member

Ms. Pedraza described how her family, which includes biological, foster and adoptive children, encountered many challenges trying to navigate the multiple systems often involved in the care and treatment of children with mental disorders. So much of the mental health world operates from a deficit perspective requiring families to prove their needs, rather than strengths, to get services. Workers have coerced parents and threatened to take children away when families try to fight for appropriate services. Suggestions to engage families include: (1) Put mental health at the forefront of health policy decisions and research efforts; (2) Research should focus on the human side of mental health, the connections to others, trust, pleasure, joy and respect. In other words, examine what caring looks like and what happens when this caring is incorporated into mental health services; and (3) Researchers need to become involved with families and their children long enough and deeply enough to really understand the multiple factors that affect children and their families. Researchers need to listen to families.

DISCUSSANTS
Brenda Souto,
National Alliance for the Mentally Ill

Ms. Souto described her experiences as a parent of a child with several disorders. She has been her son's case manager for 20 years and has had good experiences with psychiatrists and psychologists in Maryland, a parity-enforced state. Trying to find good services was another problem. She cited a report, Families on the Brink, that NAMI released a year ago, summarizing the stigmatization of families who often are blamed for no-fault brain disorders. She said the most unfortunate result of the lack of access to mental healthcare is when the family is forced to relinquish custody of their ill child to the state in order to get needed mental health services.

Carl Bell, M.D.,
Community Mental Health Council, Chicago

Dr. Bell described the insufficient infrastructure in the community health system. Back in 1980, President Jimmy Carter pushed for a plan to increase the infrastructure. But the plan never came into being because Carter lost the presidency. Dr. Bell encouraged conference participants to make sure they take action to ensure the agenda moves forward. He is particularly interested in African Americans. In order to fix the problems of African Americans within these various systems, African Americans must be involved in the conversations. The black community trusts the community centers but not the universities. Black people are concerned about who is testing their children and why. Partnerships between community-based organizations and the universities is one way to make technical expertise available to train community-based staff. Such efforts are underway at Dr. Bell's agency and the University of Illinois in Chicago, but they are costly. Few community agencies have the resources needed to train their staff in evidence-based interventions. Community-based organizations need to receive funding to assist them in training their staff and such support is necessary to help infuse evidence-based interventions into community-based services.

Michael M. Faenza, MSSW,
National Mental Health Association

Mr. Faenza noted that this session's presentations demonstrate children's mental health as a social justice issue. The disparities in access and treatment highlight the social injustice issues that come into play in children's services. He highlighted challenges in diagnosing mental disorders in children, and a need for more research in diagnosis and treatment. Because so much negative public attention is focused on overprescription of psychotropic medications and overdiagnosis in young children, particular sensitivity around such issues is needed to prevent the damage that such publicity could do. The prevalence of mental disorders and substance abuse disorders in the juvenile justice system suggests a starting point for change in operative services systems for children.

Phillipa Hambrick,
Family Member

Ms. Hambrick described her experiences as a grandmother and mother, providing family care to four grandchildren in need of mental health services for ADHD and major depression. She had difficulty getting services for these children, due to distance or because the children were put on a waiting list for services. The children eventually received services through the school system and through youth and family services. But such services must be expanded and made more comprehensive, she said. If she were to move, her children would lose the services because they would be in a different jurisdiction.

February 26, 2010

Helping Children and Youth With Bipolar Disorder

Helping Children and Youth With Bipolar Disorder: Systems of Care
This fact sheet provides basic information on bipolar disorder in children and describes an approach to getting services and supports, called “systems of care,” that helps children, youth, and families thrive at home, in school, in the community, and throughout life.

What Is Bipolar Disorder?
Bipolar disorder is a brain disorder that causes persistent, overwhelming, and uncontrollable changes in moods, activities, thoughts, and behaviors. A child has a much greater chance of having bipolar disorder if there is a family history of the disorder or depression. This means that parents cannot choose whether or not their children will have bipolar disorder.

Although bipolar disorder affects at least 750,000 children in the United States 1 , it is often difficult to recognize and diagnose in children. If left untreated, the disorder puts a child at risk for school failure, drug abuse, and suicide. That is why it is important that you seek the advice of a qualified professional when trying to find out if your child has bipolar disorder.

Symptoms of bipolar disorder can be mistaken for other medical/mental health conditions, and children with bipolar disorder can have other mental health needs at the same time. Other disorders that can occur at the same time as bipolar disorder include, but are not limited to, attention-deficit/hyperactivity disorder, conduct disorder, oppositional defiant disorder, anxiety disorders, autistic spectrum disorders, and drug abuse disorders. The roles that a family’s culture and language play in how causes and symptoms are perceived and then described to a mental health care provider are important, too. Misperceptions and misunderstandings can lead to delayed diagnoses, misdiagnoses, or no diagnoses—which are serious problems when a child needs help. That is why it is important that supports be in place to bridge differences in language and culture. Once bipolar disorder is properly diagnosed, treatment can begin to help children and adolescents with bipolar disorder live productive and fulfilling lives.

What Are the Signs of Bipolar Disorder?
Unlike some health problems where different people experience the same symptoms, children experience bipolar disorder differently. Often, children with the illness experience mood swings that alternate, or cycle, between periods of “highs” and “lows,” called “mania” and “depression,” with varying moods in between. These cycles can happen much more rapidly than in adults, sometimes occurring many times within a day. Mental health experts differ in their interpretation of what symptoms children experience. The following are commonly reported signs of bipolar disorder:

Excessively elevated moods alternating with periods of depressed or irritable moods;
Periods of high, goal-directed activity, and/or physical agitation;
Racing thoughts and speaking very fast;
Unusual/erratic sleep patterns and/or a decreased need for sleep;
Difficulty settling as babies;
Severe temper tantrums, sometimes called “rages”;
Excessive involvement in pleasurable activities, daredevil behavior, and/or grandiose, “super-confident” thinking and behaviors;
Impulsivity and/or distractibility;
Inappropriate sexual activity, even at very young ages;
Hallucinations and/or delusions;
Suicidal thoughts and/or talks of killing self; and
Inflexible, oppositional/defiant, and extremely irritable behavior.
What Happens After a Bipolar Disorder Diagnosis?
If a qualified mental health provider has diagnosed your child with bipolar disorder, the provider may suggest several different treatment options, including strategies for managing behaviors, medications, and/or talk therapy. Your child’s mental health care provider may also suggest enrolling in a system of care, if one is available.

What Is a System of Care?
A system of care is a coordinated network of community-based services and supports that are organized to meet the challenges of children and youth with serious mental health needs and their families. Families, children, and youth work in partnership with public and private organizations so services and supports are effective, build on the strengths of individuals, and address each person’s cultural and linguistic needs. Specifically, a system of care can help by:

Tailoring services to the unique needs of your child and family;
Making services and supports available in your language and connecting you with professionals who respect your values and beliefs;
Encouraging you and your child to play as much of a role in the design of a treatment plan as you want; and
Providing services from within your community, whenever possible.
How Can I Find a System of Care for My Child With Bipolar Disorder?
Contact the system of care community in the box on the back of this fact sheet. If none is listed or that system of care community is not in your area, visit mentalhealth.samhsa.gov/cmhs and click “Child, Adolescent & Family” and then “Systems of Care” to locate a system of care close to you. If you prefer to speak to someone in person to locate a system of care, or if there is not a system of care in your area, contact the National Mental Health Information Center by calling toll-free 1.800.789.2647 or visiting mentalhealth.samhsa.gov.

Are Systems of Care Effective?
National data collected for more than a decade support what families in systems of care have been saying: Systems of care work. Data from systems of care related to children and youth with bipolar disorder reflect the following:

Children and youth demonstrate improvement in emotional and behavioral functioning.
Caregivers report that children and youth have a reduction in conflicts with others in the family.
Caregivers experience an increased ability to do their jobs.
Caregivers report fewer missed days and a reduction in tardiness from work.
Children and youth with bipolar disorder improve in school-related tasks, such as paying attention in class, taking notes, and completing assignments on time.
Children and youth with bipolar disorder have fewer contacts with the juvenile justice system after enrolling in a system of care.
The Core Values of Systems of Care
Although systems of care may be different for each community, all share three core values. These values play an important role in ensuring that services and supports are effective and responsive to the needs of each child, youth, and family. These core values are:

Systems of care are family-driven and youth-guided.
Systems of care are culturally and linguistically competent.
Systems of care are community-based.
Austin’s Story
At age 12, Austin appears to be a typical sixth grader—he likes to play basketball and video games, and is enrolled in an after-school horseback riding program. He is an honor roll student, and his mother describes him as compassionate, loyal, and a champion for the “underdog.” Austin and his family also manage the challenges of bipolar disorder each day.

Austin was diagnosed in first grade with attention-deficit/hyperactivity disorder and separation anxiety disorder, but Austin’s mother, Kim, recalls a series of incidents that led her to question whether her son’s mental health needs were being met. At age 9, Austin set two fires within a week. The first time it happened, Kim thought it was an isolated incident that would not be repeated— Austin said he was lighting candles.

The second time Austin set a fire, however, the situation was very different. While bringing groceries into the house, Austin set a small fire in the car. When Kim discovered signs of the fire the next morning, she says, “I immediately got on the phone and started calling his physician. Thoughts were flashing through my mind about what could have happened.”

After Kim received a referral from Austin’s physician for diagnostic testing and other mental health services, she learned that her son had been experiencing hallucinations, which were causing him to set the fires. She also learned that his extreme mood swings, as well as his unusual sleep patterns, were signs of bipolar disorder. As a result, Austin was hospitalized for 20 days and diagnosed with bipolar disorder. During this time, Austin was accepted into a system of care through a referral from his school guidance counselor.

Kim says the system of care played an important role in helping Austin make the transition from the hospital to his home—even providing transportation, as Kim’s car was being repaired at the time. System of care staff helped Kim learn more about her son’s disorder. They also helped her locate services and supports tailored to Austin’s needs, including counseling, health care, specialized schooling, after-school programs, transportation, and child care.

The system of care also empowered Kim to be a more effective advocate for Austin’s needs. Before joining the system of care, she says, “I tried to fit the service to the need, rather than fit the need to the service. That was a mistake.”

Kim also assumed that professionals were best able to determine how to meet her child’s needs. After working in partnership with the system of care, Kim now knows that services and supports should be responsive to Austin’s needs and that her and her son’s input into the services and supports is crucial.

Despite the successes her family has had, Kim emphasizes that the journey to wellness is not over. In addition to coping with the symptoms of bipolar disorder, she and Austin also must overcome the stigma associated with mental illnesses. Together, Kim and Austin counter this stigma by educating others that he, and others with mental illnesses, should be known for who they are rather than the disorders they happen to have. Despite the ongoing challenges of stigma and bipolar disorder, Kim believes that the system of care has made a huge difference in terms of helping her family move forward.

What Steps Are Necessary To Enroll in a System of Care?
Although each community’s system of care is different, most children and youth in a system of care go through the following steps to be enrolled:

Step One: Diagnosis and Referral—To be considered for system of care enrollment, your child must have a diagnosed behavioral, emotional, or mental health disorder that severely affects his or her life. Additionally, most children and youth are referred to a system of care by mental health providers, educators, juvenile justice professionals, child welfare professionals, physicians, and others who might already be serving your child.

Step Two: Assessment and Intake—Once your child has been diagnosed and has been referred to the system of care, the system of care may ask you to answer some questions that will help you determine whether or not your child and family are eligible to receive services and supports. If your child and family are eligible, you may have to answer more questions so the system of care can begin to understand your needs. Throughout these steps, the system of care will work with you to fill out all of the necessary paperwork.

Step Three: Care Planning and Partnership Building—After your child and family are enrolled, the system of care will work with you to determine what services and supports best fit your child’s and family’s needs. Once the care planning is complete, the system of care will develop partnerships among you and all of those who are helping your child and family to ensure that services and supports are as effective as possible.
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